Collecting and sharing information about pregnancy and parenting for people with disabilities
DPPI Publications
DPPI produces a series of informative guides of use to disabled parents and health professionals. All guides are free to disabled people in the UK (when ordered for their own personal use). A charge is made to others. Some of the content may only be relevant to people in England. In addition to the publications listed here, DPPI can provide information on a range of other subjects. Contact DPPI for further information.
Which format?
Most guides are available in a choice of formats. These are indicated next to the details of the publication. Where a guide is not available in your preferred format, please let us know. We are working hard to make most of our publications available in all relevant formats. Other formats may be available on request. Please make sure you specify which format you require when ordering. The cost of publications is the same, for all formats, except for electronic formats.
New publications
Supporting parents with
learning disabilities and difficulties: a starting point (T3)
Primarily aimed at professionals and students who work with parents with a learning disability, it contains an introduction to some of the issues faced by this group of parents, along with a collection of resources and contacts. These include national organisations, websites and contacts; local projects & services; accessible information for parents; tools, guidance and resources for professionals; and further reading for professionals.
44 pages. Published 2011. Price: £6 plus postage (PDF £5)
Reports
Maternity information gap for physically disabled parents (REP1)
Report on a UK study on physically disabled parents' experiences of maternity services. Reveals that physically disabled people embarking on parenthood face a number of challenges in getting appropriate information and support, including negative attitudes from some health professionals, a lack of knowledge and information available for both parents and professionals, as well as poor communication between disabled parents and professionals.
9 pages. Published: June 2009. Price: free plus postage (PDF free)
Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
Read full report online | Download PDF
Good practice guides
Working with deaf parents: a guide for midwives and other health professionals (G1)
A guide to help health professionals from a range of settings work effectively with new deaf mothers and their partners. This guide gives health care professionals an idea of how to ensure services are accessible to deaf parents. Additional information of specific relevance to midwives is also provided throughout this guide.
25 pages. Published: 2007. Price: £6 plus postage (PDF £5)
Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
Information for schools working with deaf parents & parents-to-be (G3).
Provides information to help teachers and support staff in education to work effectively with deaf parents and their children. From deaf awareness and the Disability Discrimination Act through to home-school communication and parents' evenings, this publication offers guidance on how to ensure education services are accessible to deaf parents.
21 pages. Published: 2007. Price: £6 plus postage (PDF £5).
Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
Supporting children at school: a guide for visually impaired parents and education professionals (G4).
Provides parents and professionals with a wealth of information and suggestions to help parents support their children at school, and includes a checklist of questions for professionals to address in order to enable this group of parents to support their children’s education. This is one of a series of guides which aim to provide information on how to overcome barriers to parents’ involvement in their children’s education. Other titles in the series are:
- Choosing and applying for schools (T6)
- Education resources and contacts (T7)
31 pages. Published: 2007. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
Practical guides
Bathing your child (P1)
Contains tips, strategies and ideas for bathing babies and young children. It also gives details of useful equipment, organisations and resources.
48 pages. Published: 2004. Price: £6 plus postage (PDF £5)
Formats available: Print, Audio tape, Large Print 18pt, PDF
Choosing cots and beds (P2)
Looks at the range of cot options available, covering the main different cot designs and some of the key commercially available cots and beds. It guides the reader through the key points to consider when choosing a cot or bed or adapting a cot. It also lists details of a range of organisations, manufacturers and suppliers that may be of help to disabled people choosing a cot or bed.
51 pages. Published: 2006. Price: £6 plus postage (PDF £5)
Formats available: Print, Audio tape, Large Print 18pt, PDF
Nappy changing and dressing (P3)
Provides guidance on various methods of nappy changing of use to people with a range of disabilities. It also provides information on relevant equipment, and details of useful organisations.
43 pages. Published: 2006. Price: £6 plus postage (PDF £5)
Formats available: Print, Audio tape, Large Print 18pt, PDF
Carrying a baby or child on a wheelchair (P4)
This discusses parents’ solutions, strategies and ideas for carrying babies and young children on wheelchairs and scooters, including possible adaptations, alongside a list of important safety considerations. I t also gives details of useful organisations and websites for further advice.
25 pages. Published: 2005. Price: £6 plus postage (PDF £5)
Formats available: Print, Large Print 18pt, PDF
Reference guides
Disabled parenting: a list of references (R1)
Contains details of various reading and reference materials on the subject of disabled parenting, including books, reports, journal articles, legislation and government guidance. These may provide useful background reading for disabled parents, the professionals supporting them such as advocates, solicitors, barristers and health and social care workers, as well as students, and anyone who wishes to read or learn about disabled parenting.
28 pages. Published: 2011. Price: £6 plus postage (PDF £5)
Formats available: Audio CD, Braille, Print, Large Print 18pt, PDF
Legal advice & family support agencies (R3)
A guide for disabled parents and those working with them, providing information about organisations that may be able to offer advice and support. It includes brief descriptions and contact details for organisations offering information, advice and support in areas such as legal entitlements, finding legal representation, general family/parenting support, advocacy, welfare benefits, fostering & adopting, and education.
24 pages. Published: 2011. Price: £6 plus postage (PDF £5)
Formats available: Audio CD, Braille, Print, Large Print 18pt, PDF
Topic guides
DVD: Guide to pregnancy and childbirth for deaf parents (DVD1)
This innovative DVD for deaf parents and parents-to-be is presented in British Sign Language with sub-titles and voice-over, and with supplementary leaflets. Commissioned by DPPI, these resources have been produced by deaf production company, Remark! The development of these resources was deaf-led and parent-led with the input of a wide range of health professionals. It is envisaged that they will be used by deaf parents and professionals working with them. Released March 2006.
1 hour. Published: 2006. Price: £15 plus postage
Formats available: DVD, P (supplementary leaflets only).
Having a baby: guides for visually impaired parents and professionals
A series of three guides that help visually impaired people through the process of becoming a parent and also to assist professionals working with them in understanding how to meet the needs of this group. Available in print, large print, Braille, audio CD, DAISY CD. (DAISY only available as set of three)
Planning, pregnancy and birth: a guide for visually impaired parents and professionals (H1)
Offers a wealth of information and tips for the planning and antenatal stages through to the birth of the baby.
54 pages. Published: 2006. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
From birth onwards: a guide for visually impaired parents and professionals (H2)
Offers information and tips for the postnatal stages, becoming a parent and caring for a new baby.
52 pages. Published: 2006. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
Useful resources for parenthood: a guide for visually impaired parents and professionals (H3)
Offers a wealth of information on organisations, resources and equipment which may be helpful when becoming a parent and throughout parenthood.
45 pages. Published: 2006. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
Deaf families (T2)
Currently being revised. Copies of the old version may be available. Please contact DPPI.
17 pages. Published: 2004. Price: £6 plus postage (PDF £5).
Formats available: Print, Large Print 18pt, PDF
Supporting parents with learning disabilities and difficulties: a starting point (T3)
Primarily aimed at professionals and students who work with parents with a learning disability, it contains an introduction to some of the issues faced by this group of parents, along with a collection of resources and contacts. These include national organisations, websites and contacts; local projects & services; accessible information for parents; tools, guidance and resources for professionals; and further reading for professionals. (November 2011)
44 pages. Published: 2011. Price: £6 plus postage (PDF £5).
Formats available: Print, Large Print 18pt, PDF
Parenting with MS (T4)
Currently being revised. Copies of the old version may be available. Please contact DPPI.
17 pages. Published: 2004. Price: £6 plus postage (PDF £5).
Formats available: Print, Large Print 18pt, PDF
Choosing and applying for schools: a guide for visually impaired parents (T6)
Provides parents with information and suggestions to help them understand the processes involved and the choices that they will have to make in finding a school place for their child. It is one of a series of guides providing information on how to overcome barriers to parents’ involvement in their children’s education. Other titles in the series are:
- Supporting children at school (G4)
- Education resources and contacts (T7)
22 pages. Published: 2007. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
Education resources and contacts: a guide for visually impaired parents and education professionals (T7)
Provides information on resources and organisations relevant to visually impaired parents supporting their children at school, and also for education professionals working with them. It is one of a series of guides providing information on how to overcome barriers to parents’ involvement in their children’s education. Other titles in the series are:
- Supporting children at school (G4)
- Choosing and applying for schools (T7)
24 pages. Published: 2007. Price: £6 plus postage (PDF £5).
Formats available: Audio CD, Braille, Daisy CD, Print, Large Print 18pt, Large Print 26pt, PDF
One-handed parenting: a practical guide for new parents (T8)
Contains information on various aspects of baby care for one-handed parents, including lifting and carrying, nappy changing, feeding, going out and about, bathing and bedtime. For each task area, the guide suggests things to consider and also offers practical tips and equipment ideas. The guide is aimed at parents who need to carry out tasks with one hand, and may also be useful for health professionals supporting one-handed parents. (April 2009).
48 pages. Published: 2009. Price: £6 plus postage (PDF £5).
Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
Pregnancy, birth and early parenthood: a guide for physically disabled parents (T9)
Offers practical information and guidance on all stages of having a baby, from pre-pregnancy planning, antenatal care and birth options, to preparing for and adjusting to new parenthood. At each stage the guide suggests points to consider and offers practical tips and equipment ideas, as well as providing information on rights. The guide is aimed at physically disabled parents and parents-to-be, as well as the health and social care professionals who support them.
134 pages. Published: 2007. Price: £15 plus postage.
Formats available: Audio CD, Print, Large Print 18pt, PDF
Read or listen to full publication online | Download PDF
Collated articles
These articles are drawn from past issues of Disability, Pregnancy & Parenthood international: a journal for parents and professionals
C1 – Parenting with arthritis
Price: £6 plus postage. Formats available: Print
C2 – Deaf families
Price: £6 plus postage. Formats available: Print
C3 – Parenting with a learning difficulty
Price: £10 plus postage. Formats available: Print
C4 – Parenting with a visual impairment
158 pages. Published 2011. Price: £10 plus postage (PDF £8)
Formats available: Braille, Print, Large Print 18pt, Large Print 26pt, PDF
C5 – Parenting with a back condition
Price: £6 plus postage. Formats available: Print
C6 – Spinal injury and parenting
Price: £6 plus postage. Formats available: Print
C7 – Good practice for midwives
Price: £10 plus postage. Formats available: Print
C9 – Parenting and cerebral palsy
Price: £6 plus postage (PDF £5). Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
C10 – One handed parenting
Price: £6 plus postage (PDF £5). Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
C11 – Fatherhood and disability
Price: £6 plus postage. Formats available: Print
C12– Parenting and MS
Price: £6 plus postage (PDF £5). Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
C13– Parenting and spina bifida
Price: £6 plus postage (PDF £5). Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
C14– Parenting and epilepsy
Price: £6 plus postage. Formats available: Print
C15– Parenting with mental health issues
Price: £6 plus postage (PDF £5). Formats available: Print, Large Print 18pt, Large Print 26pt, PDF
Other publications
Needs assessment (NC1)
A concise guide for those considering a community care needs assessment. It describes the process and gives guidance on how to prepare for an assessment in order to ensure that all your needs as a parent are considered. The guide also includes a self-assessment toolkit to help parents and parents-to-be think through their support needs.
21 pages. Published: 2008. Price: £6 plus postage (PDF £5).
Formats available: Audio tape, Braille, Print, Large Print 18pt, PDF
'They said what? Myths about disabled parents and community care legislation
This guide by Jenny Morris is made up of a series of questions and answers which identify and explain common misconceptions about the assistance and equipment available to disabled parents to help them to look after their children. It gives information about what disabled people are entitled to, lists relevant legislation and government guidance, and provides details of organisations that can provide advice and information.
18 pages. Published: 2004. ISBN 1 85935 195 6
Price: free, plus postage (PDF free).
Download PDFFormats available: Audio, Braille, Large Print, Print, PDF
Deaf parents: gaps in services (GV1)
This video shows Deaf parents sharing their experiences of maternity services in the UK. A mum to be, new mother and Deaf couple talk about the barriers they have encountered and what they feel should have been made available to them. The video describes human rights legislation that affects Deaf parents and includes a directory of useful organisations. It can be used as an awareness-raising tool for health professionals.
16 minutes. Published: 2004. Price: £5 plus postage
Formats available: VHS video
Postage
Prices for all publications are quoted above. Postage rates are as follows:
- UK: £3 for first item; £50p for each additional item.
- Europe: £5 for first item; £3 for each additional item.
- Outside Europe: £6 plus postage for first item; £3.50 for each additional item. No postage is charged on electronic versions of publications.
How to order
All guides can be ordered directly from DPPI
Paying by cheque: Cheques should be in Pounds Sterling and payable to 'DPPI'. Please send with order.
Paying by card: Card payments can only be made online. Read the following instructions and then click on Donate.
Select 'Donate now' and enter the total amount. Please email info@dppi.org.uk to confirm your order has been paid by card, quoting name of payer and date of payment.
A 2.75% handling charge is made for card payments.
Paying by bank transfer (BACS): Payment can be made by bank transfer to the DPPI bank account, details as follows:
Bank sort code 72 00 04
Account name DPPI
Account number (4) 34886084
Please send indicate on your order that payment has been made by bank transfer.
Quantity discounts
Discounts are available for bulk purchases:
10 to 200 copies: 10%
200-499 copies: 35%
500+ copies: 50%
DPPI, National Centre for Disabled
Parents,
Unit F9, 89/93 Fonthill Road, London N4 3JH
Tel: 0800 018 4730
email: info@dppi.org.uk
